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NATIONAL
TOLL-FREE NUMBERS
(GR5), Update January 2002
__________________
A publication of:
NICHCY
National Information Center for Children and Youth with Disabilities
P.O. Box 1492
Washington, DC 20013
E-mail: nichcy@aed.org
Web site: www.nichcy.org
1-800-695-0285 (Voice/TTY)
____________________
The following is a selected list of toll-free numbers for national organizations
concerned with disability and children's issues. Inclusion on this list does not
imply endorsement by NICHCY or the Office of Special Education Programs. There
are also many national disability organizations providing services and
information which do not have toll-free numbers. If you would like additional
help in locating assistance contact NICHCY at 1-800-695-0285 (Voice/TTY).
Note: Telephone numbers are designated either Voice (V) or Text Telephone (TTY),
indicating their accessibility to TTY users.
____________________
AIDS
CDC National Prevention Information Network
1(800) 458-5231 (V; English/Spanish)
1(800) 243-7012 (TTY)
CDC National STD and AIDS Hotline
1(800) 342-2437 (V); 1(800) 227-8922
1(800) 344-7432 (V; Spanish)
1(800) 243-7889 (TTY)
Hemophilia and AIDS/HIV Network for Dissemination of Information
1(800) 424-2634 (V)
HIV/AIDS Treatment Information Service
1(800) 448-0440 (V; English/Spanish)
1(888) 480-3739 (TTY)
IDS Clinical Trials Information Services
1(800) 874-2572 (V; English/Spanish)
1(888) 480-3739 (TTY)
National Pediatric & Family HIV Resource Center
1(800) 362-0071 (V; English/Spanish)
ALCOHOL AND DRUG ABUSE
Families Anonymous
1(800) 736-9805
National Clearinghouse for Alcohol and Drug Information
1(800) 662-4357; 1(800) 729-6686
1(800) 767-8432 (Spanish)
1(800) 487-4889 (TTY)
National Council on Alcoholism & Drug Dependence
1(800) 622-2255
OSAP National Clearinghouse for Alcohol and Drug Information
1(800) 729-6686 (V; English/Spanish)
1(800) 487-4889 (TTY)
AMERICANS WITH DISABILITIES ACT (ADA)
ADA in Action
1(800) 949-4232 (V/TTY)
Disability Rights Education and Defense Fund ADA Technical Assistance
Information Line
1(800) 514-0301 (V/TTY, English/Spanish)
Disability & Business Technical Assistance Centers (DBTACs)
1(800) 949-4232 (V/TTY)
Equal Employment Opportunity Commission
1(800) 669-3362 (V; English/Spanish)
1(800) 800-3302 (TTY)
Job Accommodation Network (JAN)
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)
U.S. Architectural and Transportation Barriers
Compliance Board—Access Board
1(800) 872-2253 (V); 1(202) 272-5449 (TTY)
1(800) 993-2822 (TTY)
U.S. Department of Housing and Urban Development—HUD User
1(800) 245-2691 (V)
ASSISTIVE TECHNOLOGY / DEVICES
AbleNet
1(800) 322-0956 (V)
Alliance for Technology Access
1(800) 455-7970
Chrysler Corporation Automobility Program
1(800) 255-9877
IBM Independence Series Information Center
1(800) 426-4832 (V); 1(800) 426-4833 (TTY)
TechKnowledge
1(800) 726-9119
1(404) 894-1414 (V; Atlanta Metro Area)
BLINDNESS / VISUAL IMPAIRMENTS
American Council of the Blind
1(800) 424-8666 (V; English/Spanish)
American Foundation for the Blind
1(800) 232-5463 (V)
American Printing House for the Blind
1(800) 223-1839
Blind Children's Center
1(800) 222-3566 (V)
Hadley School for the Blind 1(800) 323-4238 (V)
Library Reproduction Service (LRS)
1(800) 255-5002
Lighthouse National Center for Vision and Child Development
1(800) 334-5497 (V); 1(212) 821-9713 (TTY)
National Association for Parents of Children with Visual Impairments
1(800) 562-6265
National Library for the Blind and Physically Handicapped
1(800) 424-8567 (V)
1(800) 424-9100 (Voice mail, English)
1(800) 345-8901 (Voice mail, Spanish)
Prevent Blindness America
1(800) 221-3004 (V)
Recording for the Blind and Dyslexic
1(800) 803-7201 (V)
The Foundation Fighting Blindness
1(888) 394-3937 (V); 1(800) 683-5551 (TTY)
BURNS
Phoenix Society for Burn Survivors
1(800) 888-2876 (V)
CANCER
American Cancer Society
1(800) 227-2345
Cancer Information and Counseling Line
1(800) 525-3777 (V)
Candlelighters Childhood Cancer Foundation
1(800) 366-2223 (V)
National Brain Tumor Foundation
1(800) 934-2873 (V; English/Spanish)
National Cancer Information Service
1(800) 422-6237 (V; English/Spanish)
1 (800) 332-8615 (TTY)
CHILD ABUSE
Clearinghouse on Child Abuse and
Neglect/Family Violence Information
1(800) 394-3366 (V)
Prevent Child Abuse America
1(800) 244-5373
CHILD CARE
National Child Care Information Center
1(800) 616-2242 (V; English/Spanish)
1(800) 516-2242 (TTY)
National Resource Center for Health and Safety in Child Care
1(800) 598-5437
COMMUNICATION DISORDERS
Communication Aid Manufacturers' Association
1(800) 441-2262
National Institute on Deafness and Other Communication Disorders Clearinghouse
1(800) 241-1044 (V); 1(800) 241-1055 (TTY)
National Center for Stuttering
1(800) 221-2483
National Stuttering Association
1(800) 364-1677
CRANIOFACIAL SYNDROMES
Children's Craniofacial Association
1(800) 535-3643 (V)
Craniofacial Foundation of America
1(800) 418-3223
Faces—National Craniofacial Association
1(800) 332-2373 (V)
DEAFNESS / HEARING IMPAIRMENTS
American Society for Deaf Children
1(800) 942-2732 (V/TTY)
Better Hearing Institute
1(800) 327-9355 (V/TTY)
Hear Now
1(800) 648-4327 (V/TTY)
Hearing Aid Hotline
1(800) 521-5247 (V/TTY)
John Tracy Clinic
1(800) 522-4582 (V/TTY; English/Spanish)
1(213) 748-5481 (V; in 213 area)
1(213) 747-2924 (TTY; in 213 area)
National Cued Speech Association
1(800) 459-3529
National Information Clearinghouse on Children Who are Deaf-Blind (DB-LINK)
1(800) 438-9376 (V); 1(800) 854-7013 (TTY)
National Institute on Deafness and Other Communication Disorders Clearinghouse
1(800) 241-1044 (V); 1(800) 241-1055 (TTY)
DISABILITY AWARENESS
Kids on the Block
1(800) 368-5437 (V)
EDUCATION
American Association for Vocational Instructional Materials
1(800) 228-4689 (V)
American School Counselor Association
1(800) 306-4722 (V)
Association for Childhood Education International
1(800) 423-3563 (V)
Urban Special Education Leadership Collaborative
1(800) 225-4276 (V)
U.S. Office of Educational Research and Improvement
1(800) 424-1616 (V; English/Spanish)
EMPLOYMENT
Equal Employment Opportunity Commission
1(800) 669-3362 (V; English/Spanish)
1(800) 800-3302 (TTY)
Job Accommodation Network
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)
FINANCIAL COUNSELING
National Foundation for Consumer Credit
1(800) 388-2227 (V)
HOSPICE
Children's Hospice International
1(800) 242-4453 (V/TTY)
Hospicelink
1(800) 331-1620 (V)
INFORMATION CENTERS
Abledata/National Rehabilitation Information Clearinghouse
1(800) 227-0216 (V/TTY)
Access ERIC
1(800) 538-3742 (V)
Eric Clearinghouse on Disabilities & Gifted Education
1(800) 328-0272 (V/TTY)
National Clearinghouse for Professions in Special Education
1(800) 641-7824
National Information Center for Children and Youth with Disabilities (NICHCY)
1(800) 695-0285 (V/TTY; English/Spanish)
National Institute of Arthritis and Musculoskeletal and Skin Diseases
Clearinghouse
1(877) 226-4267 (V)
National Lead Information Center
1(800) 424-5323
National Maternal & Child Health Clearinghouse
1(888) 434-4624
ODPHP National Health Information Center
1(800) 336-4797 (V)
Office of Minority Health Resource Center
1(800) 444-6472 (V; English/Spanish)
Zero to Three/National Center for Infants, Toddlers, and Families
1(800) 899-4301
LITERACY
Laubach Literacy
1(888) 528-2224
National Institute for Literacy’s Literacy Hotline
1(800) 228-8813
MEDICAL / HEALTH DISORDERS
American Association of Kidney Patients
1(800) 749-2257 (V)
American Brain Tumor Association
1(800) 886-2282 (V)
American Cancer Society
1(800) 227-2345 (V; English/Spanish)
American Diabetes Association
1(800) 342-2383 (V; English/Spanish)
American Heart Association
1(800) 242-8721 (V; English/Spanish)
American Kidney Fund
1(800) 638-8299 (V)
American Liver Foundation
1(800) 638-8299 (V; English/Spanish)
American Lung Association
1(800) 586-4872 (V; English/Spanish)
Aplastic Anemia & MDS International Foundation
1(800) 747-2820 (V)
Asthma and Allergy Foundation of America
1(800) 727-8462
Chronic Fatigue and Immune Dysfunction Syndrome Association
1(800) 442-3437 (V)
Crohn and Colitis Foundation of America
1(800) 932-2423
Eating Disorders Awareness and Prevention
1(800) 931-2237
Family Voices: A National Coalition Speaking for Children with Special Health
Care Needs
1(888) 835-5669 (V)
Federal Hill-Burton Free Hospital Care Program
1(800) 638-0742 (V)
1(800) 492-0359 (V; in MD)
Foundation for Ichthyosis and Related Skin Types
1(800) 545-3286
Leukemia and Lymphoma Society (formerly the Leukemia Society of America)
1(800) 955-4572 (V)
Lupus Foundation of America
1(800) 558-0121 (V)
1(800) 558-0231 (V; Spanish)
National Brain Tumor Foundation
1(800) 934-2873 (V; English/Spanish)
National Heart, Lung, and Blood Institute Information Center
1(800) 575-9355 (V; English/Spanish)
National Lymphedema Network
1(800) 541-3259
ODPHP National Health Information Center
1(800) 336-4797 (V)
Shriners Hospital for Crippled Children
1(800) 237-5055 (V)
Sickle Cell Disease Association of America
1(800) 421-8453 (V)
United Ostomy Association
1(800) 826-0826 (V)
Vestibular Disorders Association
1(800) 837-8428
MENTAL HEALTH
Anxiety Disorders Information, National Institute of Mental Health
1(888) 826-9438 (English/Spanish)
National Alliance for the Mentally Ill
1(800) 950-6264 (V)
National Hopeline Network
1(800) Suicide (784-2433) (English/Spanish)
National Institute of Mental Health Information Line
1(800) 647-2642
National Mental Health Association
1(800) 969-6642 (V); 1(800) 433-5959 (TTY)
National Mental Health Consumer Self-Help Clearinghouse
1(800) 553-4539 (English/Spanish)
National Mental Health Services, Knowledge Exchange Network (KEN)
1(800) 789-2647
1(800) 790-2647 (Safe Schools, Healthy Children)
Research and Training Center on Family Support and Children's Mental Health
1(800) 547-8887
NUTRITION
Beech-Nut Nutrition Hotline
1(800) 523-6633 (V)
Gerber Parents Resource Center
1(800) 443-7237 (V)
PHYSICAL DISABILITIES
Christopher Reeve Paralysis Foundation
1(800) 225-0292
Easter Seals—National Office
1(800) 221-6827 (V); 1(312) 726-4258 (TTY)
Human Growth Foundation
1(800) 451-6434 (V)
Muscular Dystrophy Association
1(800) 572-1717
National Institute of Arthritis and Musculoskeletal and Skin Diseases
Clearinghouse
1(877) 226-4267 (V)
National Library Services for the Blind and Physically Handicapped
1(800) 424-8567 (V)
1(800) 424-9100 (Voice mail, English)
1(800) 345-8901 (Voice mail, Spanish)
National Limb Loss Information Center
1(888) 267-5669 (English/Spanish)
National Spinal Cord Injury Hotline 1(800) 962-9629 (V)
Pathways Awareness Foundation
1(800) 955-2445 (V)
RARE SYNDROMES
Genetic Alliance
1(800) 336-4363 (V); 1(888) 205-3223 (TTY)
National Organization for Rare Disorders (NORD)
1(800) 999-6673 (V/TTY)
RECREATION
Adventures in Movement for the Handicapped
1(800) 332-8210 (V)
Magic Foundation
1(800) 362-4423 (V)
North American Riding for the Handicapped, Inc.
1(800) 369-7433 (V)
Sunshine Foundation
1(800) 767-1976 (V)
REHABILITATION
Abledata
1(800) 227-0216 (V/TTY)
Childrens Resource Line
1(800) 638-8864 (V)
National Clearinghouse of Rehabilitation Training Materials
1(800) 223-5219 (V)
RESPIRATORY DISORDERS
National Jewish Center for Immunology and
Respiratory Medicine — Lungline
1(800) 222-5864 (V)
National Heart, Lung, and Blood Institute
Information Center
1(800) 575-9355 (English/Spanish)
RESPITE CARE
Arch National Resource Center, National Respite Locator Service
1(800) 773-5433 (V)
RURAL
Eric Clearinghouse on Rural Education and Small Schools
1(800) 624-9120 (V)
Rural Institute on Disabilities
1(800) 732-0323
SPECIFIC DISABILITIES
American Association on Mental Retardation
1(800) 424-3688 (outside DC area)
(202) 387-1968 (in DC)
Angelman Syndrome Foundation
1(800) 432-6435
Aplastic Anemia & MDS International Foundation
1(800) 747-2820 (V)
Autism Society of America
1(800) 3-Autism (328-8476)
Brain Injury Association
1(800) 444-6443 (V)
Children and Adults with Attention Deficit Disorder (CHADD)
1(800) 233-4050
(301) 306-7070 (in Washington, DC metro area)
Cleft Palate Foundation
1(800) 242-5338
Cooley’s Anemia Foundation
1(800) 522-7222 (V)
Cornelia de Lange Syndrome Foundation
1(800) 223-8355 (V); (860) 676-8166 (V; in CT)
Crohn's and Colitis Foundation of America
1(800) 932-2423
Cystic Fibrosis Foundation
1(800) 344-4823 (V)
Epilepsy Foundation-National Office
1(800) 332-1000 (V)
Huntington's Disease Society of America
1(800) 345-4372 (English/Spanish)
International Dyslexia Association
(formerly the Orton Dyslexia Society)
1(800) 222-3123
International Rett Syndrome Association
1(800) 818-7388
Learning Disabilities Association
1(888) 300-6710
Little People of America
1(888) 572-2001
Lyme Disease Foundation
1(800) 886-5963
National Center for Learning Disabilities
1(888) 575-7373
National Center for Stutttering
1(800) 221-2483 (V)
National Down Syndrome Congress
1(800) 232-6372 (V)
National Down Syndrome Society
1(800) 221-4602 (V; English/Spanish)
National Fragile X Foundation
1(800) 688-8765 (V)
National Lymphedema Network
1(800) 541-3259
National Multiple Sclerosis Society
1(800) 344-4867 (V; English/Spanish)
National Neurofibromatosis FoundationV 1(800) 323-7938
National Organization for Albinism and Hypopigmentation
1(800) 473-2310 (V)
National Organization on Fetal Alcohol Syndrome (NOFAS)
1(800) 666-6327
National Reye's Syndrome Foundation
1(800) 233-7393 (V)
National Scoliosis Foundation
1(800) 673-6922 (V)
National Stuttering Association
1(800) 364-1677
National Tay-Sachs & Allied Diseases Association, Inc.
1(800) 906-8723 (V)
National Tuberous Sclerosis Association
1(800) 225-6872 (V)
Neurofibromatosis, Inc.
1(800) 942-6825
Osteogenesis Imperfecta Foundation
1(800) 981-2663 (V)
Prader-Willi Syndrome Association
1(800) 926-4797 (V)
Spina Bifida Association of America
1(800) 621-3141 (V; English/Spanish)
Stuttering Foundation of America
1(800) 992-9392 (V)
Support Organization for Trisomy 17, 13, and Related Disorders
1(800) 716-7638
Sudden Infant Death Syndrome Alliance
1(800) 221-7437 (V)
Tourette Syndrome Association
1(800) 237-0717 (V)
Treacher Collins Foundation
1(800) 823-2055
United Cerebral Palsy Associations
1(800) 872-5827 (V; English/Spanish)
United Leukodystrophy Foundation
1(800) 728-5483 (V)
United Scleroderma Foundation
1(800) 722-4673 (V)
Supplemental Security Income (SSI)
Social Security Administration
1(800) 772-1213 (V; Spanish)
1(800) 325-0778 (TTY)
1(800) 392-0812 (TTY; in MO)
TRAUMA
American Trauma Society
1(800) 556-7890 (V); 1(800) 735-2258 (TTY)
Brain Injury Association
1(800) 444-6443 (V)
National Spinal Cord Injury Association
1(800) 962-9629 (V)
___________________________________________
January 2002
This list is made possible through Cooperative Agreement #H326N980002 between
the Academy for Educational Development and the Office of Special Education
Programs, U.S. Department of Education. The contents of this publication do not
necessarily reflect the views or policies of the Department of Education, nor
does mention of trade names, commercial products, or organizations imply
endorsement by the U.S. Government.
This information is copyright free. Readers are encouraged to copy and share it,
but please credit the National Information Center for Children and Youth with
Disabilities (NICHCY).
www.nichcy.org
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